Quote:
Originally Posted by Kewlbutterfly
Hey all,
Long time since I last posted in here but, I finally got the official diagnosis. Anesthesia Dolorosa.
I don't know if you all remember that I had an MVD procedure done in Aug of 2006 and it had failed leaving me in more pain. My Neurologist now is Neuropathic Pain Management Specialist, he told me that this was caused from my Neurosurgeon damaging my trigeminal nerve during the MVD procedure. Now, I am in constant pain like when you go to the dentist and the numbing stuff starts to wear off but this never does, it feels like pins and needles yet it never ends. My Neurosurgeon wanted nothing to do with me after the surgery and now I know why! He kept telling me to "give it more time to heal". The bad thing is I have no "physical" way to prove it because you can't physically see the damage. (It's not like he cut the wrong arm off, it is worse no one can see my pain) Anyways, I am posting to see if there are any other people out there that have had the same thing happen to them.
Anyone else out there that is suffering from Anesthesia Dolorosa after a MVD procedure? I would love to know that I am not alone!!!  |
I had mine - MVD done in the year 2000 - they assured me that they knew what they were doing NOT!! Nothing showed in 4 CT scans, 5 MRIs and an Angiogram and they still did it!! After the operation was over I woke with the right side of my face severly paralized - to the point were I was drooling and couldn't close my eye. I kept doing the work out that the gave me and eventually most of it came back you can still see some of the problem. Because of the damage the doctor did no one will touch me syrgically anymore and my only option is pain killers - YEAH! And I am being sarcastic on that. My regular GP retired so I've been through a series of three who are all convinced that I either don't hurt as much as I say I do or I'm a drug addict looking for my next score. Nobody will take the time to LISTEN to me and help me - all they see is the drugs that we all take and it just frustrates me to know end!!! You are not alone - you AD was more than likely caused my your surgeon and if you can I would advice you to sue for mal-practice. Good luck - and the BEST piece of advice is find a great General doctor so you don't get further screwed over like I am right now.