heres my short story, , at age 14 i was diagnosed with mg generalized mg which i have it all over and occular and put on prednisone, a drug your not to be on for a long period of times, then i was on prostegme ( better look up corecct spelling ) that was for about 2 yrs in which they then put me on mestinon 60 mg i was taking about 10 or so a day later with mestinon timespan 180 mg for bedtime- it helps thur the night and not have to take a mestnon 60 mg i was having a hard time i was 16 yrs old, then at 18 i was advised to have a thymectomy thats what they knew in 1975 ( ooh make me sound old lol) it did help me and from 18 yrs old to oh about 35 yrs old was on mestinon 60 mg about 12 a day and timespan) what i did not know i was overdosing myself with all that mestinon and no my neuro at that time did not tell me any thing different not to take less) i was doing pretty good at times, but as time goes on when i was sick with a cold i would have a very hard time breathing and i would have to sit up againt the wall to be able to breath becasue i could not lay down and with a snuffuing nose and muccus in your lungs cant cough it out very hard for a person with mg so anyway yrs went on like that becasue i thought that how it is with mg and at that time my neuro i had did not know of immunosuppressants or did not think of it not sure i did not know myself,so about 1989 GREAT NEURO) if anybody needs one in redding ca i got one for ya- i got a respitory infection form a child i was visiting at someones homes at christmas and did not know the child was that sick, so in one day i got the infection i was at home could not hardly breath had to call paramedics to come to the house they check my oxygen was way low took me to the hospital there i had to be on breathing machine- for 9 days then my new neuro had me have a plasma exchange to take out my old blood to see if that help me recover form the infection along at that time advise i be put on immunosuppressants i did not want to but what do you do when your in the hospital and tyrying to recover and thinking this can happen again with your immumne system fighting yourself, so i did and within a week i felt my breathing so magnifisat i was so happy of the choice i made even knowing the effects drugs can do to you, even with that it was 10 yrs later on cyclosporine(sandimune) i had to be taken off it cause kidney damage, well i was a little upset but i knew it could do that but you dont think things can happen but they do, and now i chose to take aza knowing what effects it can do but being able to breathing walk talk eat laugh over rides the bad things it can do and makes me more scare knowing what can happen to me if i wasnt on aza or a immunosuppressants , been there done that and its scary and im not trying to scare you with info but just got to fine out the good and the bad and make choices whats right for each person. knowing mg bodys immune sytems fights agaist ones self and casues you to not be able to breath- swallow walk , im happy with my choice and you will just have to look up or hopfully people have the answers your looking for. since i moved from ca i was scared to have to fine a new doc but my nuero from ca. gave me a name here in reno and been with him now 8 yrs and fantastic nuero. as koilover512 says. have to go with the flow,, some days are good some are excellent and some are slooooooooooooooooooow with faituge linda