Quote:
Originally Posted by Burntmarshmallow
I know of at the least 3 people that have A.D. 
I being one of them Mine came from an auto accident . Doodlebugs sadly hers came from failed surgery ... well surgeries more then one if i recall. and I believe Nikki was hit with A.D. from successfully brain surgery not positive but I think so.
You are not alone . I can not have any surgeries any more and I have a neuro stimulator implanted for my pain. as NO MEDS helpped with pain.and like you no doctors or neuros wants anything to do with me . Kinda stinks when they do their work and things turn out different they toss ya to the curb like trash then when ya try to make things better ..find a different doc and fill them in on your medical history... they act like you have cooties or something ( cant get to rude here) they are afraid to do any work on you. or in my case they cant because it will leave more permanent damage. but i have to truthfully and honestly say that getting my neuro stimulator has given back part of my life. It dose not take away all my pain but it takes the ugly edge off it. I have been reading the Neuro stimulator is being used to treat A.D. so maybe you could inquire about that as a possible option for you. And if i can help do not hesitate to private message me or post here. I will be more then glad to help with ANYTHING!! 
I am so sorry you have to live with this horrible monster pain everyday. But you are not alone not in the least not one bit. I will see if i can round up the others I mentioned so they can reply also. but first my pain pal I need to give ya lots of
:group hug: :group hug:
Low pain wishes Kewl
PEACE
BMW |
Yes, I too have AN, exactly as you describe for the same reasons. My Neurosurgeon was planning to install a Pain Stimulator and I need to call him and set it up, like yesterday. Been up with no sleep for the past 48 hours. I had 2 rounds of Gamma Knife and 2 rounds of MVD. So, now I too have Anesthesia Delorosa. The pain is caused by the TN nerve that has been 'over-worked' is the explanation given to me. In other words, 'You had too much work done" I trust my Neurosurgeon, but he has yet to call me to install one which is not a picnic. I need to reach him today to find out if his new method has worked on his 2 other patients before I was used as a ginna pig. I feel like I am now being ignored because there is no more money to be made by this procedure. I added up the cost of everything done so far and it tops at 1/2 Million bucks! Not sure, but I certainly will address the subject. I've suffered with TN for about 8 years and the way the he explained it is: imagine losing a leg. Your brain still thinks the limb is still there and you still receive and transmit pain signals to that limb. That is how AN was explained to me. I have hot sharp knife stabs into my ear, eye, and face and ants running along my face, lips and eyes most of the day. I have chewed my teeth down to knobs because TN also granted me with TMJ. I rarely talk to people, only from a distance because of my ugly teeth. My husband has been a trooper thru it all, I'd be dead otherwise. Even when I threw every wine glass into the fireplace out of the anger & frustration from the constant unrelenting HOT pain I've endured. I'm at the edge again this morning having not slept in the past 48 hours from the pain. I'm sorry for all of you, and I'm sorry that I also suffer with you all. The pain is just the worst ever, I cannot even suck on butterscotch candies as they are the best tasting morsels in the world! Blessed be to everyone this morning. somehow, someway with GOD'S guidance, I will make a decision very soon.