Hi Linda
Im very very sorry you are going through this. I have RSD internally and am mostly bed ridden. My hubby has back pain issues and he is my care taker. we have moments of frustration...we try to laugh through them and remember that even though our bodies dont cooperate, we still love each othr and am glad to be together. I have had RSD for 5 years now and sex is out of the question. even though i offer to please him, because h isnt bad off like me, he just says no..its no fun if he cant make me happy too. So we try to find a few thngs to do together. in the nice weather we yard sale. i cant get out of the car, but we just enjoy being together. he i very funny, so he is always thinking up silly things to say or do to make me laugh. we definitely have our moments getting on eachother nerves, but i try to not be demanding of things i need, because he i mostly me legs and he tries to let me help where i can. like folding laundry or choping vegeltables when he is cooking. I know its hard, but try to make eachother smile. write eachother a love letter and try to appreciate the little things.
hope this helps a little
Lori
Quote:
Originally Posted by nevadabound
so as i read and what info i have already read about rsd, im asking you all, from a spouses point of view ( wife here) , what do you do to help with your spouce with rsd, how to make things better for them, with the frustrating times, the non sleep times- the medication making you feel weird times the pain is so painful they want to cut there limb off times you know give me some advice to help make it easier on them and it might help me as well ( does make me want to cry knowing what rsd does to a person)  as of now we are both disabled and home so i can help him thur out the day, maybe its just the frustrating time hes feeling inside his body and he cant do nothing about it i try to be understanding but im human we lash out at eachother at times we dont deal with stress to well both dealing with there own desases and our bodys feeling this n that inside we are both stuborn och bite my tounge lol , mabe i dont know what to be asking maybe just how another spouse copes-handle-with there spouse going to thru RSD?? (want to use the right word dont want you to think im not sensitve ) linda |