You're welcome. There is indeed hope. Seeing our disease legitimized, recognized by national entities such as Social Security and the National Organization of Rare Diseases, helps in the face of those who still think we're somehow making this up. I only wish that I were..... Like I told my husband yesterday, yes, the extra income from SS is helpful, but it's not like I could feel well enough to spend it anyway. If anything, we'll likely end up spending it on someone to assist with caretaking.