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Old 01-28-2011, 11:14 AM
Swatgen27 Swatgen27 is offline
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Join Date: Oct 2009
Location: Illinois
Posts: 114
15 yr Member
Swatgen27 Swatgen27 is offline
Member
 
Join Date: Oct 2009
Location: Illinois
Posts: 114
15 yr Member
Heart

Hi,
Im so sorry to hear that your daughter has had a tough year. It wish I could give you an answer as far as the next step in treatments but I can help you with some information relating to Rush's Pain Center in Chicago and more specifically Dr. Lubenow. Last year I was treated by dr Lubenow and the treatment plan started with 3 out patient ketamine treatments. The 3 treatments provided a lot of relief and I have tried almost every treatment for rsd. The dr requested I do the 5 day in patient treatment and I said no because of the catheter that they place in the spine for 5 days while performing the ketamine 5 day treatment. The catheter is used to provide a continous nerve block for cases that have pain from the waste down and I my case it's in both legs. My voiced concerns really set Lubenow off and he became extremely rude. I just want to warn you of his possible bedside manor because even at age 27, I was left speechless as to what ge said to me the last time I saw him. He told me I would be dead by 30 if I did not do exactly as says and he would not talk about the invasive part of Rush's 5 day treatment. In my battle of rsd I tried numerous spine invasive treatments which caused the rsd to progress.
Long story short: I think the ketamine treatment will work well for your daughter especially since she is at year 1 so she is still in the time frame for a significant remission with the proper treatment. Just be careful of how you approach Lubenow. Also, at the time I did the out patient treatment I had been fighting rsd for 3.5 years and I had great results so I can only imagine what it could do for your daughter and the out patient treatments are non-invasive and only cost 300.00 per treatment. Hope this helps you and your daughter, my heart goes out to you both.
Sarah
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