Wow.... if it weren't for the mother/daughter aspect of your post, I almost could have written it myself. I've told my husband before that my only saving grace in all of this is that I got the disease rather than my daughter. I feel for you, having to watch her suffer. It must at times be almost more than you can bear. It brings tears to my eyes just thinking of it.

I'm so sorry to hear about what you're going through. I can't imagine your poor daughter going through this at such a young age. She's so fortunate to have a mom like you on her side.