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Originally Posted by mellemmel
thanks loretta
I hope I can find support here- but I still feel like I have nothing to complain about really. my pain level is low most days.
I have worried about the scs spreading the crps. But my pain dr feels we could get it into remission if we aggressively attack the pain early. I am hopeful. I can only trust my team at this point. I have educated myself as much as I can.
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Hi mellemmel,
Entraped nerves are a tricky area. Mine are in the elbow and did have a Ulnar nerve entrapment which might have caused some neuromas. All I can tell you is be very careful who you allow to do any type of nerve surgery. I'm not going to go into my whole long story but after many surgeries, many RSD procedures including Ketamine I finally go off most of the meds. my arm was back to 90% good functioning but still had this strange relentless pain in the elbow. So a neuroma was mentioned by one of my doctors my surgeon did not agree did not want to do a surgery to try and find something but did it anyway, as my pm doctor stated " I had to beg him to do it". I should of listened to my surgeon when he said NO. And honestly it made the pain worse and 4 years later I'm still searching for an answer of what this pain is. Everyone agrees it's some type of nerve problem but what type and can not been seen on any films.
I have been communicating with a doctor who teaches at John Hopkins and has his own Periphial Nerve Center in MD for about 2 years. But I not ready to jumb into the arms of another surgeon.
Gabbycakes