I know what it feels like to not be diagnosed. I am a 37 yr. old Mom of a 5 yr. old son. Life was going great for me last summer. Happy marriage, happy kid, happy life. Then one day I had burning and tingling in my feet. It went away and then came back a few days later, then quickly over a few weeks spread to my whole body and also with burning pain. i quickly went from being a avid exerciser to unable to barely walk.

First neruro basically thought I was crazy. 2nd believed me but could not find a diganosis after numerous tests, MRI, emg, etc. He then referred me to a 3rd neuro. He did more tests, and he said that although he can't give me a diagnosis of neuropathy, he does have alot of patients like me, who have similar neuropathy symptoms, but its not neuropathy. He said that it will probably be 10-15 years before the medical community comes up with a name for this condition I have, but that I'm not alone. He then referred me to a pain specialist. She also said she sees alot of patients like me, similiar symptoms, who have no diagnosis. She said the growing theory of the cause of this is that its an autoimmune response between different types of tissue within the body....for example, between nerve tissue and muscle tissue.

I'm not sure what to think of what the Dr's have said to me. I have finally accepted that for now, I may not get a diagnosis. and for me my main priority now is symptom relief and getting my life back on track. I started exercisisng again, by finding new ways to do it that don't aggrivate my pain. And once I'm feeling my pain is finally being managed and I"m living a somewhat normal life again, then I'll persue maybe going to Mayo clinic or Stanford to see what the real experts have to say.

I take my hubby to all my appointments with specialists. He is a great advocate for me and he also now better understands what is going on with me too. I encourage you to take your fiance with you....it make you feel like you aren't in it alone.

Hang in there, you aren't alone.