There's no spinal or direct nerve issues that would cause the wasting?
Have you had a MRI recently just to check for any new things?

Your drs don't have any idea on this?
could it be a blood flow issue? can someone give you massages regularly to keep blood flowing?
I don't know how sensitive to touch you are though...

I wonder if something like a Chi machine would be of help for you or if it would be too painful.

Here's the Amazon link if you want to read more about them- when you select one - you can scroll down for ratings & reviews.
http://www.amazon.com/s/ref=nb_sb_ss...x=chi+machines

epinions -
http://www.epinions.com/well-Persona...~chi%20machine