Annie, There are very good rheumatologists in MN. As for "sending" you one, yeah, right. There must be one where you live that is not in that group. Preferably a woman. You could contact the Lupus Foundation for a recommendation.

Since your pain and your breathing are so bad, I would've though this guy might make some kind of recommendation for those two things.

Your reaction to K-Dur is interesting. But I doubt it's the lack of water that caused you to feel worse. It may be that the drug may not dissolve as well due to a lack of water but I would bet that it was the potassium itself that was the problem. Has someone thoroughly checked out your kidney function?

http://www.drugs.com/k-dur.html

Having ocular myositis is kind of like having ocular MG, the chance of it being only ocular is low. Did that doctor even give you anything for it last summer?

http://www.cybersight.org/bins/volum...=1-351-355-487

Have you been checked for Lyme Disease?

Your doctors are not asking enough questions or doing enough "diagnosing" for you. Why they are being so dismissive is puzzling. I'm glad at least this neuro is willing to help you. That's a great result of your appointment.

I hope you will continue to find doctors to help you.

Annie