[QUOTE=brohar;740002]I just broke down in front of my fiance because i just dont understand what is happening to me. This was supposed to be the best time of our lives. We are getting married in June in the mountains of asheville, nc. Im only 31 and currenlty undiagnosed for nearly 3 months. I'm lucky to not be in terrible pain but the doctors cant seem to figure out anything and my symptoms dont seem to be getting any better. One day ill think im getting better only to be knocked down the next day with worse symptoms.

Ive remain pretty optimistic but i have moments like these that really tear me apart. Im scared of what the future may hold, how raising a family would be, etc and so on.

I started a sports pick-up group in my city 2 years ago, id never been super athletic but loved sports. In 2 years it grew to 350 people strong. I became one of the top 15 volleyball players in the group, and believe me, my skills started at nothing. I met many great people and kept in great shape and had lots of fun. Now i cant play at all because it makes my symptoms worse. Im just at a loss..

Thanks for listening, i needed to vent and could use any support...


I am pretty much Rosethorne's older sis. Her story is pretty much mine. I am one year and 9 months and no dx. I had a very hard time accepting no dx., but now am happy to reduce sensations/pain. When your physical symptoms are reduced, you will feel better mentally and emotionally. Keep working with Dr's to manage pain, etc.

I have also come to look at the "no dx" in a different way........think of all the things they have eliminated......I am sure you are glad you don't have them!

Even the closest person to you will not understand what you are going though, I made the mistake of thinking they would, only to find myself more and more frustrated and sad & disappointed. It is important they have an understanding of the symptoms, limitations, etc., but they will not understand what it is like to be a person with these symptoms.

Come on this site for your support, we understand.