Tracy, Good, I'm glad the appt. went well.

Give the Mestinon time. Remember, you've been without proper treatment for a long time, so it will take longer to recover. And it may be the spacing between doses that does you the most good, not necessarily increasing the dose amount. How many hours do you wait between taking it?

You may want either an infectious disease doctor and/or an immunologist to check your IgA, IgD, IgE, IgG and IgM to see if you have a deficiency or more that make you more susceptible to infections.

The PT guys probably all have one basic goal: Make it better. So until she sees you a few times, she probably won't "get it."

I hope you will invest in an oximeter for yourself. Or go see a pulmonologist, which you should anyway for full PFT's, and have them write you a script for one.

Sooner or later, the ER will "get it" too.

Hang in there.

Annie