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Old 02-25-2007, 01:58 AM
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rsd kitti rsd kitti is offline
Junior Member
 
Join Date: Feb 2007
Location: arroyo grande calif.
Posts: 76
15 yr Member
rsd kitti rsd kitti is offline
Junior Member
rsd kitti's Avatar
 
Join Date: Feb 2007
Location: arroyo grande calif.
Posts: 76
15 yr Member
Post Inhishands

Sorry to jump in here but I.m going on almost 4 yrs and Im in stage 3 already. I use to be able to take a bath because Im in a wheelchair from RSD and I use to take 3 or 4 a day their are days that I cant even get in the water anymore. I hate it and everything I have has to been soft my cloth everything. I slept the first 3 yrs on top of the bed with fur then I started dating and I finally was able to get soft enough sheets and I also have a cast on still after all this time and Im now sleeping under the sheets but there are times when My back is so bad that I cant stand it. All I found was soft blankets ,clothes, pillows anything. Its so hard...................Half my body now is almost always purple and red and black spots. I dont really know what to say except the softer the better when its that bad. I went to a conference a yr after I was just in the chair with my exhusband now as of june of 2006 and he is a nures he couldnt handle it and I am to I worked for hospic before my accident and there was this girl alot younger then me and I was watching her and I kept on thinking that was going to be me she couldnt be touched wind air anything was more painful and guess what its me at 39 yrs old raising a 15 yrs old boy alone without family support and my wonderful boyfriend moved to Oregon and we were going with him we have not made it yet I just saw him and it was in the 30s and 40s but I love him enough to try the pain was hard but then I came home and went to court to finish property issues and the stress got to me 4 days in court over 20 throusand dollars in fees and Im falling apart but Im doing my best but Im still under the sheets but I have the flu and lost my voice for the last week 2 days after court so anything tigers it and anything you or he can find that helps then go for it one day it does and the next it might not but my pain is at the level the dr said anymore meds the strenght of them that he would have to put me in the hospital to stay to live...............So I keep going I cant and nothing workes that they have found injections ,pump.stimaltor Im getting desperate that he want to try another stimalor and put it in my neck but one bad move and I cant feel my son so I have been putting it off but I dont know anymore and the pump they caused a hole in my spinal cord so that came out but they waited 8 months so do what ever is good that day. Im sorry I didnt mean to butt in but I didnt think wind could hurt me but it does and I hope your husband doesnt get there. But go for anything...............Anything that works for him it might not make sence but it will to the pain..............Sorry again and good luck I hope I didnt scare you Im in a bad stage and cant find any dr that can help anymore.....................BEST WISHES TO BOTH OF YOU............. Gentle hugs Karen
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Gentle Hugs Karen
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Last edited by rsd kitti; 02-25-2007 at 02:20 AM.
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