I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.

Best Wishes

Hello, Sally, my name is Margo..I have recently been kinda diagnosed with Multiple Sclerosis. The Neuro found 8 lesions on my mri, but my spinal tap came back negative. I have been so tired that it has been a super challenge to even go to work. I really feel drunk, and I hate the feeling. My kinda diagnosis has been rather frightful, for I thought I had a pinched nerve in my arm. I have been having a feeling in my hand that it is frost bit. However, this feeling only comes when I am sleeping, while awake my arm is just heavy and very tingling. My legs are weak and wobbly. If you could give me any information on mulitple sclerosis I would greatly appreciate it. My neuro really doesn't have many answers for me, and as scared as I am I need some kind of feeling of peace with this.

Thank you so much,
Margo