In my life I don't expect people to understand. I just wish for a check in to say hi or see how I am,not to judge,or for people to come up with cures or what they feel I should be doing in my treatment. I have learned to tell people what I need but also what does not help. So I hope with your fiance or who ever you speak up for yourself and talk about how you feel. Also for a person who you live with ask them how they feel and that you understand the toll it takes on them and are there to talk about it.
So much with this condition is unknown of what course it will take. I do live in fear and anxiety but like I said I am trying to work on staying in the day and doing the best I can. My pain doctor says on the bad days do the best you can and on the better days do the most you can.