Hi Margo. Welcome to the group. Sorry for the circumstances. I think I am the strange one as I had no idea MS was even a possibility and my diagnosis was very quick. In a sense, I am lucky for this as there are people who spend years trying to get a definitive answer. I was diagnosed in 2008 as RRMS and that was changed in 2010 to PPMS.

Its a very tricky disease that seems to change from day to day. One good thing I have found is the support system here in this group. I am able to find others who have the same symptoms and can offer good advise. And they are very supportive here. You will find that we all become a big family, celebrating victories, supporting each other in sorrow and making each other laugh when we desperately need it.

I wish you luck with your doctors. I will agree with the others that an LP isn't a definite. In fact, my second neuro (who i am still seeing) does not order them unless the patient requests it.