Alice, you are such a good doc. Do you think your MG has made you approach medicine differently?

I try to believe there is an opportunity here. I am frustrated that I cant just stop the doctoring and rest and give my burned out daughter a time out. Neither of us are doing well at appointments. I need so many tests. I have been too sick or on the one good day dont have ride. For the stomach pain and diareah I was to have a Ct scan and blood work per my pcp. The blood work only is done. And....bone scan (to see how my bones are continuing to deteriorate- I had to request as this is getting lost in the rest of my health issues I was supposed to be sent back to Endo--this is going on from hyperparathyroid issues from chronic low D)---and the test the ENT ordered a swallow test and an MRI with contrast on my neck (new neuro said he is VERY interested in the outcome of this. I had an outstanding vit D test as the first on my pcp ordered that I requested was ordered as the wrong test. It is now done as the neuro ordered it with his labs.

I dont have the strength to deal with doctors on points of confusion which helps no one and none to try to help my daughters work thru their fears and anger so they can help me more. I asked for a family meeting right after Christmas. Didnt happen. In light of the last disaster appointment at the university (not recent one) my daughter said we have to have one now. In this much pain I am not jumping on that wagon. This stuff is so hard on families. My grandkids miss me so much. I started to cry briefly when I went to this in front of the new doc. My grandkids bring this out everytime. I was very very close to them.

Annie59