Alice thanks for this, its made me look at my neuro in a differnent light.
He was always quick to dismiss me, when I collapsed twice, he ignored it saying it was nothing. I struggled on. When I couldn't hold my head up and was in pain and totally messed up emotionally with dealing with a horrid disease in my 30th year, he hospitalised me and said it was depression. I struggled on.
He always says I'm his difficult patient, with all these wierd added symptoms, I'm not a nice normal run of the mill patient, I make him think, my words not his.

Now he is listening, I rang up saying I was muscle fatigued and tired all the time(low iron which is being fixed) he orded ivig and said if this lot worked he will organise a 3 month trial of 6 weekly infusions........at last I think he understands that I know my body well, and much more than he does. He organised all this on his holidays to, I said "thank you so much for doing this on your time off" he acutally sounded embarrased, but I needed him to know how important it was to me.
So it has taken many years of me talking and him dismissing my problems, but I hope really hope I have taught him some things, because it has been a struggle at times. I don't think it should have taken this long, but that is life, no other neuro is close by......
sorry for the ramble, but have needed to get this off my chest for a long while...