I backed off on the valium. The Rx is not very big (25 pills) and I dont want to get hooked on it. I've only been taking that if the spasticity starts to hurt.

I'm trying to back off the baclofen a little bit. Trying to only take it at night when I sleep, instead of taking it on a schedule during the day. I talked to my aunt (a nurse practitioner) tonight and she told me that she thinks some of my problems (the sensation of edema, and maybe even the insomnia) is from the oral pred that I was taking just before Xmas. Which kind of makes sense. That crap sticks around for awhile.

She also reminded me that edema can make numbness feel worse. Which might explain the extra numbness. (I'm drinking water to make myself get rid of extra salt)

Everything has been freaking me out for the past couple of months. Talking to my aunt helped. She's a great nurse...and I think she knows more about the meds I'm taking than the doctors who are prescribing them to me.

I managed to eat dinner tonight (yummy gyros! Mmmm!) and it didnt make me feel sick when I was done. Lately everything I eat has made me feel sick. I did have a weird sensation in my stomach that felt like spasticity and a serious fullness sensation about a half hour after I was done. My aunt said that was probably just the spasticity and the heat of the food, she didnt think it was my stomach not working. (asked me questions about things and determined that my stomach is working fine, among other things )

I am still not used to having the MS, this year has been the worst because I've had the worst flares (and the most flares) this year. I'm tending to panic about everything because I still dont understand it all and its still kind of new even tho I've been diagnosed since 2007. (My diagnosis anniversary is in 4 days)

I'm still stiff, still sore, still have weak legs and am really really tired, and still walking funny, but some of the sick sensation seems to have let up after talking to my aunt. I'm really really glad she lives across the street from me and that she's a nurse.

I think the fact that my neuro told me that he didnt know what to do with me kind of stressed me out and annoyed me a little bit. Told me that today when he suggested another neuro. I'm considering going to the other neuro. Kind of hoping I'll find a neuro here in town who is willing to Rx LDN, or have me checked CCSVI. If I switch, I'll probably hold off for a few appointments before I start asking about that stuff.

I think I might be able to sleep tonight, so I'm going to go attempt it. Hope it works, I'm tired of falling asleep every time I sit down at my computer to do anything or just whenever I sit down.