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Old 02-05-2011, 10:01 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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I'm also diagnosed with both MS and Trigeminal Neuralgia. I take Klonopin + Cesamet and had to discontinue many types of birth control methods that threw my hormones out of whack and triggered TN attacks (both typical and atypical type attacks - I'm affected on both sides).

My doctors are aware of these attacks, but they've not suggested surgery. The medications for the most part keep things in check, but I do have occasional breakthrough moments of pain.

You mention that MVD (correct me if I'm wrong with the acronym) isn't available for those with MS. Why is this, or was this one doctor's opinion?

I'm curious myself as this is a symptom that is quite dominant in my own case of MS, unfortunately I don't have much info to offer on the surgery side, only the medications and choices (birth control cessation primarily) which have helped me.

I hope you can find some answers to your questions and concerns.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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