Quote:
Originally Posted by AnnieB3
You should give your neuro a call if things get worse. Obviously you are still on the verge of an MG crisis. You may be for quite some time. It's not fair but that's the way it is. You may need more IVIG, more often or need to add Prednisone on a short term basis, like IV SoluMedrol in the hospital for a couple days and then tablets.
|
When I was experiencing similar symptoms (trouble talking, moving my tongue, holding my head up, breathing), my neuro put me in the hospital for IV SouMedrol which didn't help and then he ordered a series of plasma exchanges (the first and only time so far). While I was in the hospital they decided to also do my thymectomy which was scheduled to be done in a couple weeks.
Up to that time I had only experienced ocular symptoms. While I knew these were all possible, it was still a little scary.