I'm now taking 60 mg of Mestinon every four hours. The visiting nurse fired the PT lady right away.

Thank you for telling me the Mestinon can take time to work; I didn't know that! My neuro has tested a bunch of IGG and IGM stuff, but I can certainly make an appt with an immunologist; my son sees one.

I"m having a Pulmonary Function Test next week. At my VNA visit this week, my pulse ox was 96.

When is it bad?

Annie, check out www.lymefriends.org and www.lymenet.org.