Redtail, Thank you for your moving story. It sounds very familiar in the part about being a diffcult patient that has extra things going on. How did your family respond during the days of such dissmissal by the doc and intense illness for you? I am having a real hard time with my daughter giving up and listening to docs at times. At least this new neuro truly stunned her and taught her something when he so so quickly and readily set up the IV fluids to preceed the mega dose of vitamin D. That whole thing at the university ended in the student doc that worked for my internist taking me to the lab one visit with no word why and getting blood work. When he came in he PROCLAIMED "HA!!! you have no dedydration so you cant get fluids because it cant be ordered legally!!" This was written up of course and made me look like again I dont know my body and I am nutty. I never said I was dehydrated. I said maybe to a nurse and the student in ENdocrinology as I struggled to explain the severe symptoms that come on after vit D that 'it is kinda like dehydrated". But I had to do that because THEY wer being so dissmissive saying "oh so you get dry mouth" the implication being I am whinning about things that are no big deal.

I hope one day I get to try IVIG. I deeply hope that.

Annie59