The one thing about neuro issues is what 'sounds and walks like a duck' could be a 'goose'! Sometimes a 'cooked' one?
That's why 'symptoms' are soo squirrelley. So keep at it Joan B and don't give up until you get some answers that just MIGHT make SENSE!
Until you get that pesky diagnosis tho? Keep all the 'WHAT-IF' demons at bay..until you know what you are really dealing with. It's not 'good' even in the ER, to be hysterical [even when YOU ARE?] to docs! Just state facts of what you are, feel and who you've seen. Over and over and over again..consistently-with your mind as clear as it can be [inspite of pain?] until you feel you are repeating a recording! IF you say the problem[s] often enuf, and clearly enuf? Some good doc might actually LISTEN! I truly hope for this with all my heart for you. 's!!!!!! - j