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Old 02-07-2011, 11:27 PM
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smae smae is offline
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Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
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smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
Default Quick update

I only have a few minutes, but I wanted to write a quick update.

Nobody can figure out why my SCS isn't working. They all are saying maybe the hardware isn't working correctly etc... but I KNOW that isn't the problem. If it was a hardware problem, I wouldn't feel the sensation, and I do.

The problem is that I don't feel it where I need it... therefore I am convinced that it is just in the wrong spot.

After weeks of fighting through appointment after appointment, we finally have a next step.

Tomorrow (Feb 8th) I am going in for a second trial surgery. I will turn my stimulator off and go through the process again. This time, it will be placed below the permanent implant. Hopefully, that will get the sensation to move from my legs (where I currently feel it) down to my feet (where I need it).

I will spend half of the trial with both stimulators running, and half with only the temporary running.

If I get relief from both, they will probably do a second implant. I don't want two of them and don't think this will be necessary. The one I have now isn't helping me in any way, so I don't imagine this will be the case.

If I get relief from just the new temporary one, they will (hopefully) go in and move my current stimulator into a new position so I can get relief permanently.

And if I don't get relief at all, I am officially out of options. Not just as far as the SCS goes, but as far as all possible pain relief options go.

So, obviously, I'm praying the trial helps tomorrow... otherwise I am out of luck!
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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