Thank guys!

Annie59- My doc isn't anti narcotic, I think he just has a protocall...He just put me on fentanyl patches, so hopefully they will help...

Shari- Thankfully my I just saw my nurologist, and she had the paperwork from the attorney in hand. She did a few tests on me and said she would make sure this was the last time I had to worry about my social security stuff. She said I am obviously disabled and the added stress is horrible for me. I alos have had the thymectomy, on pred, Imuran, and IVIG monthly, and still declining...

Annie- I totally agree with your advice to let them see me at my worst. Our disease is so fickle, I could be able to run at my court date and not able to breath an hour later even with all my meds. I will not be taking some of them the morning of my court date. My husband will take me, as I don't really drive anyway, and we may even have to use my wheelchair...I'll only use it if I really need it tho, because I don't want them to think I'm faking. I have had all my vit levels tested, and everything is normal. My nuero thinks I may be getting a little myotonia, so that may be causing the pain. I'm sure I'll cry too, I always cry at my nuros when I have to show them how weak I am and let everyone see me like that.

My husband and I reviewed the cd that social security sent us with all the medical records they had on file, and the letter from the dr that denied me was in there as well as his explanation to the person in charge as to why he decided to deny me. His reasoning is, from my thymectomy and my records from my neuro, it seemed that I was improving, and if he took into account the half life of the bad anti bodies, I would be able to work by last Oct. I don't think he understood that some people with severe MG can improve, and still be very bad off...In the begining of my diagnosis and treatment plan with my nuero, they were very conservative with telling me what I could expect. They didn't want to disuade me from thinking I might get better. But now after all the treatments and stuff and time it's been since my surgery, they finally admitted, I'll be pretty bad off forever unless I miraculously go into remission. It sux to hear, but I've already come to terms with my new life, so it's nice to know they are on my team and believe me when I tell them how weak I am. At least I know it's not all in my head. I just want it to be over with already, I need the insurance, and I really need te money. I can't take care of my kids by myself, and my husband can only make so much money, without leaving me home alone 16 hours a day. Thank you all for your support!

Jess