Member
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
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Member
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
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Have exact what you say with foot arch. And it felt like this in trunk and head at times. It didnt really happen this way till after I went on mestinon and had to go of without the aid of my crummy neuro that first winter when my symptoms improved as now I know they likely always will. My body loves the cold and gets better then needs less mestinon.
But in the middle of that first winter I also got a bad batch of generic mestinon. With the fidling around of my neuro and insurance company I was without mestinon entirely for a few days and this cramping in feet hit hard! Now what I know when it happens is that I am out of wack with my dosage some how. If I am regular on my mestinon it doesnt really happen in the big way.
The summer after that first winter when I was so frustrated and with out support from that neuro I was off the mestinon. I was miserable. I had extreme spasm-cramp like things that would take over my chest. When I looked it up it souned very much like what people with MS call 'the hug'. But when I am on mestinon this doesnt happen like it did.
I am not sure that I do not have a version of it in my head and back at times. Before I went into hosp and got the mestinon I would have my intire back lock up in excrutiating pain. I missed my daugghters birthday party in the April before I went in in July and got the mestinon. I dont know what this means but the longer I am on my feet the more horrible it was. She had given birth on her birthday. I had had to walk clear into the hosp the day before to be with her and by the day of her birthday I was in agony and could nt go back to hosp.
Annie59
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