Originally Posted by cyclelops

I have brought this up to the docs before and they look at me like I am from another planet. I will ask the endo. Part of my issue is I don't usually present to my own docs... I end up in the ER. My present primary just sends me there and has never seen one of these. My last primary was stunned when she saw these, but she didn't think carcinoid....'too rare'. Neuro says 'too rare'.....world reknown GI, 'too rare'.

I think it is worth looking at, but, honestly, I have some really odd thing. Not to make light of these, they are terrible....and full autonomic response. Interestingly, I don't dump fluid.....the next day, one would expect I would be dehydrated, but, nope, I void just fine. The last episode started at 2am but there was a prodromal period of agitation and irritation. Just didn't feel right.

By 7am, the wretching started. Wretched for half the day....it stopped, but I could take nothing by mouth. I sleep for only 15-30 min. at a time during this. Hot flashes, cold shivers, sweats, nausea and extreme head pain, nasal congestion, which goes up the nasolacrimal duct into the eye....ugh... It went on until the next morning, when it remitted, but by then, I felt like I ruptured every ligament in my body. Sometimes it comes accompanied by vertigo, not just dizziness...

I am aware there are different types of serotonin....but some kind makes me really sick....

But you are right, it is a consideration.