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Member
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
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I had my second treatment yesterday. It actually went better than the first. I called the infusion center when I left home and they ordered my IVIG so when I arrived 30 minutes later the IVIG was there waiting for me. I already had the IV shunt in so all they had to do was plug me in. It took 2 ½ hours to complete. Again it was the unmedicated version. When the treatment was done I was very light headed, weak and unsteady on my feet. When I got home I laid down for a short nap. When my nap was over I felt a lot better. I have 2 treatments next week. Thus far I have not had any reactions or side effects. Yesterday before my treatment I had a very slight headache but that could have been just pure stress. This morning I feel as I normally do.
Annieb3 I haven’t taken any Benadryl. As for my sister her single fiber test at UNC came back negative. It is back to the drawing board. We suspect it might be atonic seizures. She just needs more tests done I guess.
Mike
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