Quote:
Originally Posted by cyclelops
Also, the thing I keep in mind is these episodes are superimposed on the PN.
Autonomic issues are not rare in spinal injury and in head injury. I did not have these until I was 36 years old.....after that, I have gotten on average 8-15 per year. Using my arms above my head always brings this on....as does a 'window washing' movement. SSRIs bring it on. Several bad stressors in a row will bring it on.
Mere, I may turn red, but don't know it, since I retreat to the dark....I never noticed my color....but nasal congestion and 'migraine' are familiar, but to the extreme.
The condition is alternatively listed as Autonomic Dysreflexia or Autonomic Hyperreflexia. I would say I am more hyperreflexia....altho, constipation or filling myself a bit too much on food, will bring it on. I have not noticed a relationship to my bladder function.
I was cracked head on by a truck, both of us going roughly 55. It was most unpleasant and altho I saw a light, I met no religious figures.
I hear you saying 'migraine' Mere, and I always told them that too....'eh, it is one of my 'migraines'....I have seen people with migraines, and what I am having is not it. I also do get some quite high BPs during these...and some relief, not much, by dangling my legs over the edge of the bed....head up helps pain some, but, I am so sick, I can't stay sitting. The nerves on my head are so sore that it feels like my pillows are concrete block.
I should probably go to the academic center ER, but my problem is not getting past the ER. Grrrr. Usually I am so sick, it is the local ER which isn't far away, or I lay in bed incapacitated with my bucket. Now that my K+ levels are unstable, this is getting to be more of a concern. Since I went on K citrate, my last lab was normal....so that is a factor.
It is so complex, I don't if they will ever get to the bottom of it.
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When I was 'hit' so hard with one of these flares, I was hospitalized. I had severe abdominal pain and I was diagnosed with gastroparesis. What was ignored was the brain splitting migraine, severe itchiness all over, bladder dysfunction (inability to start the flow) and extremely low BP. For months later, I had numbness in my fingers and arm, head and inside my mouth. I did have bad POTS at that time, but it and the "numbness" subsided. But, every time I have an onset of dysautonomia (or whatever it is), I get a mind splitting migraine (ER type and one that lasts for days and then mildly for months) and I get the pain in my upper arm and tachycrdia. The flushing, GP, severe fatigue, pains and intermittent tachy are a daily event.
Importantly, eating always brings on the flushing as does alcohol.
WTF is all I have to say...