It has been a long time since I have posted anything. As I have heard many other say, this road to a diagnosis has been a long one, and very frustrating at times.

I started having double vision Jan 2010, variable bust worse with fatigue. I drive with a patch, but feel that my peripheral vision is already so limited that at times I am not able to drive. Mostly, this has just been scary, and a nuisance in my life.

During the last 13 months, I have seen countless doctors and had every test imaginable run. Good news is that everything is negative...bad news is that I still dont know what the cause of my failing eye mucles are (i have no generalized symptoms, ocular only).

I now have a wonderful nuero-opthamologist at MGH Boston. He has started me on a Meniston trial to see if it improves my symptoms. He told me to play around with the dose and see what improvements I notice. I am glad that he continues to work with me to find a solution (and takes me and my symptoms seriously). I have been taking meniston 60mg, 3 times a day and feel like i have some minor improvements. I feel like it is easier to keep my eyes open (but with that said, my husband has not noted any improvement in my ptosis) and perhaps my double vision is improved is one direction. I hope this isn't just my imagination combined with wishful thinking.

Anyway, I just wanted to see if any others have had a similar path....going on a meniston tiral with no "real" diagnosis. Or those who have purely ocular symptoms??

Thanks for reading