Hi, I don't have advice about Mestinon for Occular Myasthenia Gravis (I highly recommend abbreviating that as "OMG!"), but since you're in Boston I can't help but recommend the neurologist who finally diagnosed me. He specializes in occular myasthenia. I am seronegative and had previously had two inconclusive SFEMGs, but he did a stimulated SFEMG on my face that was finally conclusive, and I got my diagnosis.

He also noticed some things about the way my eyes move that he said he's only seen in myasthenia--things that my regular neuro (who specializes in neuromuscular diseases) had never even heard of. This is all the more impressive since my eye involvement is extremely mild. But he is so good at the eye stuff that he was able to diagnose my generalized myasthenia gravis on the basis of it. If he can do all that for someone like me, imagine what he can do for someone who actually has eye symptoms!

I know that you said you're happy with your current neurologist, but this guy seems to be one in a million. I'm not sure if I'm supposed to post doctors' names here, so I will send you a private message with his name.

Abby