Thread: meniston trial
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Old 02-10-2011, 02:36 PM
madnurse madnurse is offline
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Join Date: May 2010
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madnurse madnurse is offline
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Join Date: May 2010
Posts: 14
10 yr Member
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Quote:
Originally Posted by catie View Post
Hi, I was diagnosed with OMG from a positive Tensilon test, which was done by a neuro-ophthalmologist. My SFEMG was negative, but the neurologist stated that the EMGs can be negative, particularly with ocular MG.

I had been started on Mestinon several months before the testing, purely on clinical symptoms. Although the mestinon did not totally alleviate my double vision, it did clearly decrease my double vision and make my eyes feel "more relaxed."

Have you had a Tensilon test? If not, this might be an option. If you're having purely ocular symptoms, this test would be best performed by a neuro-ophthalmologist.

Cate
Cate,
I just mentioned the tensilon test to my neuro-opthamologist and he said he had considered it, but has decided against it for now. He said that tensilon is not easy to get, and that I would have to be hooked up to cardiac equipment when they administered it. We decided on the Mestinon since it seemed the least invasive. My eyes do feel more relaxed as you have said....i'm not straining quite as much to keep things in focus. Do you remember how long it took for the medication to be effective? Just wondering if it happens right away, or if improvement is gradual.

Thanks!
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