Tracy, I am sending you a hug. As I am sitting here numb from the recent days I can only imagine how awful you feel. I am sorry this is so awful hard. AS I read some of your post (bad reading day) it reminded me of what I am getting in that I know the docs that do the worst job with me are the ones that already decided what I have is being caused by depression-perhaps developed into chronic Fatigue or fibrom. I have learned that they think the mestinon just makes me less 'tired'. The neuro-optho doc literaly put that in the notes as his feeling aobut why I responded positively to the neostigmine injection they did to test eyes. Boy that made me angry.

TAking disorders like depression and lyme and in my case also Sjogrens and saying well it must be that pretty easily and stay in that place to me is the sign of a poor doc. To get treated like a whiner, that it isnt as bad as you say it is is further demoraling.

I feel I still have sjogens tho I first testing positive to the docs tests but then Mayo did a blood test and looked that old biopsy and disagreed. I didnt fight that from Mayo becasue I had found that Sjogrens CAN confuse findings in tests for Myasthenia and MS. It is so blasted wicked to be this sick and get such confusing 'help' or lack there of.

My goal is to get to Kansas City. My experince with the MG people there (foundation) is very positive. I dont have the money now. But I have to have the hope that it will come one day.

Annie59