MrsD: Could/would never risk the pacer. Thanks.

Everyone: Thanks for the replies. Ironically my neuro called tonight at 8:30 PM from his home to give me my MRI's results (what a trooper). The report shows ganglionitis in the lumbar area but he will review the scans himself as well.

SO, this may very well be why I have so much buzzing and vibrations from the waist down. He also says it could explain the PN as well as several other neuro issues.

I know nothing about ganglionitis, (other than his suspicion 2 years ago of dorsal root ganglionitis or -opathy based upon neuro exam), so any input would be greatly appreciated. I do have autoimmune disease (lip biopsy shows end stage Sjogren's, but I'm sero-negative) so he feels this is the cause of the inflammation.

After 11 years of IVIG (up until 2006), I had a severe case of aseptic meningitis which meant no further infusions. My neuro would love to have this as a option, but he thinks we'll have to pursue immunesuppressants or other systemic treatment. Needless to say we didn't spend 30 minutes discussing treatments over the phone on a Friday night, so I will be heading back to Hopkins for a sit down with him sometime soon.

I'm sure there is a way to search this site itself for terms/conditions, but I'm new here and still learning to navigate. My initial surfing of the current conditions & threads didn't pull anything up. I'll also head over to Google to see what it has to say.