Catra,
I'm so sorry for you! Lot of us unfortunately have been treated this way, but,
It took me 7 yrs to get to a 'good neurologist', i.e., Dr S, in Philly.

I can't really imagine two things.
Why don't ALL Neuro's know about this Nowadays,
And, this IS a Neuro disorder!
Why doesn't everyone us a neuro as a primary care doctor?
Perhaps the first question answers the second?

Lots of neuro's follow that line, so they don't 'get dirty'.
But, then, they have a real responsibility to study the pharmaceuticals, that they could use, to treat ALL the neuro disorders!

Some docs, as in any trade (and,make no mistake, it IS a trade) are lazy!

I wish you the best, and suggest you look for and follow word of mouth advice! I think you're on a good path now!

Be well!

Pete