You guys are so awesome!

Annie59, I am so sorry you are struggling so much. I wish there were a way to get you to Kansas City. I wish the MDA had resources like the American Cancer Society, like free places to stay when you are getting treatment, etc. I searched and searched and couldn't find that anywhere.

I am a therapist and I know EXACTLY what you are talking about with the "depression" box. I have had so many clients over the years struggle with that, even get sent to me for "it's all in their head." I never believed in that. I hate when doctors want to just put you into that square box because you have depression; and which came first anyway, the chicken or the egg?

Nothing is harder (I thought) than fighting for treatment and diagnosis of Chronic Lyme. It is highly politicized and doctors get their licenses revoked for treating it, there is legislation going on all over the place about whether it is "real" or not, it's a HUGE mess. Once you are lucky enough to find a doctor and travel to them, it's all out of pocket. I never, ever dreamed a doctor would try to tell me another diagnosis might actually BE Chronic Lyme!

Jana, after I did more research last night, I found out that EMGs are routinely used in diagnosing MG because they try to see if the muscle tires with repeated stimulation. I swore to GOD I would never have that torture test again, but it has been two years I think if not more, could be closer to two and a half, and when I had it I was probably very early MG if at all. So do think I spoke too soon and perhaps I need to keep this appt next week. I'm telling myself if it's too painful, I can always tell them to stop.

AnnieB3, gotta rest hands then want to respond to you.