Quote:
Originally Posted by stagger
Hello.
Having this affliction over 6 years I'm at the stage you mention (severe leg weakness and stiffness). I use a wheelchair when doing chores in the kitchen and shaving. Some folks are still getting out and about after having PN over 10 years. I don't know how many stages one goes thru having this crud, but I believe I'm in the final stages as most of the time is spent in bed (body feels better at rest) and I do much better in hot weather. Have used most of the meds mentioned on this forum as well as the supplements. Only take amitripyline and a baby asprin and Naproxen Sodium for muscle pain, went off the Methadone last week. IMO Methadone was the best of the meds except for the constipation. I guess the next thing I get hit with will be blood clots in the leg. As the old melody goes "Don't get around much anymore"  |
Stagger, yeah this stuff is no fun
Do you have any pain in your legs apart from weakness? I dont have any pain except in my left foot however if I squeeze my knee it produces an instant reaction in my foot like a ZAPping sensation.
I have also been conscious of not using my feet since like you its easier to lay down however Im a firm believer of use it or lose it so lately have been pushing myself harder.
I find it more difficult to stand after sitting for a while now. Usually i have to brace myself before standing. Also I have gained weight in the last 3 years which isnt helping any of this..