Thanks everyone for the great idea and info....

I am taking topamax 75mg, abilify 2.5mg (for preventing migraine--off label use, and because I shake 24 hours a day without it and they don't know why), 7.5 mg prednisone, 25grams IVIG for 5 days every 21 days, and mestinon 60-90mg every 6 hours this week from 60 3xday.

I also stopped omeprazole Tuesday after a taper of every other day for a couple of weeks. Neuro knows and recommended this. I have no stomach issues and never did and it was for high dose pred. Also, we think it may have been implicated in my tachycardia and bp spikes.

The tramadol is down to the most ridiculous dose at this point: 1/4 a tablet every other day this week. The surgeon said to stay on it two more weeks if I have w/drawl sx. and then call back to reassess. I left a message for neuro but got no response but it is not his area of knowledge for sure.

I don't have any pain so I don't think I need and pain expert. I tried to get off it in December but it's been hell. I dropped it from 200 mg to 50mg in 5 days because no one told me it was addictive and I had no pain. OMG, was that a disaster. And even though we slowed the taper, the withdrawl sx are just on and on even though it has now been weeks and weeks. At first they said this current 1/4 dose wasn't even a dose and to just stop but then I explained my sx and they changed their minds.

But I don't think it could be dangerous at that low a level now, right? I mean, what do you do?

debra