I went into remission after a series of plasmapherisis treatments, followed by large doses of prednisone (up to 160mg) and heavy duty antibiotics administered IV. What did the trick is up for grabs. I was close to buying it because my asthma got worse, I developed pneumonia, and I developed a port infection. It was touch and go but when I got home from the hospital I felt better than I had in years even though I was weak - burned out I guess. The prednisone was part of treating the severe asthma, although I had been on 60mg, I think, before that for the MG. This was back at the end of 2007. By Spring of 2008, I was weaning way down on pred. and lost 60 pounds. I started dating and the rest was history. I haven't looked back except to acknowledge how lucky I have been. I get strange reactions when I say this to someone who knows what I went through.
This current setback seems to be waning, so I will hide and watch.
Bill
Quote:
Originally Posted by dog lover
Bill,
I am hoping your setback is only temporary and you will soon go back into remission. I was DXed in July 09 and am starting to wonder if I may be going into remission. I am so hopeful but also scared to get my hopes up. I have felt like my old self alot of days and my bad days aren't nearly as bad. The only medication I am on now for MG is Mestinon and alot of days I don't even need it anymore. I do still notice a feeling of tiredness in my eye on days when I am realy tired and some weakness in my arms and legs but much less than ever before. I am so glad you posted this because I have wanted to ask someone who has been in remission questions but like you felt hesitant because I feel so bad for the people who suffer everyday from this disease. Would you mind sharing your remission story? I would love to hear if it was spontaneous or happened slowly, did you basicly go back to feeling like you did before MG? I look forward to hearing back from you. Your story is so encouraging and I am sending prayers that you will go right back into remission!
Kendra
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