I have no advice for your daughter other than trying to get her to someone who really knows RSD. Treating it quickly is important as we all know.

My half sister had RSD. She was very severe. Our father had severe nerve pain, so he may have had RSD also. I have mentioned my sister's RSD to a couple of my docs. One works at Cleveland Clinic and she says they think it is genetic in about 25% of the cases. But I have never seen a study or paper talking about it.

My RSD started with a stress fractured foot. A few years later, I fractured my other foot. They put me in a boot so that I could take it off in bed and to exercise it. The RSD had already spread into it before I could get to the doctor... so I don't think the boot caused it in my case. I now wear braces called AFO's. They are hard plastic, go from my toes to my knees, and are much like a cast. I use them when I have to be up on my feet, go to the grocery etc. They do help the pain in my feet.

I use lidoderm patches on my feet when they are flared up - perhaps they would help your daughter.