OMG! I am soooooo relieved. I thought I was dying yesterday morning it got so bad before the experiment.

The rest of the day and evening I felt actually normal but tired. I used 3 extra doses of mestinon Saturday to make it and I needed none after I took tramadol. And the mestinon only took my breathing down about 10 respirations/minute. They were still 25-30. After tramadol, the breathing stayed at 14-16 the rest of the day and through the night and it was the first time in a week that I was no longer conscious breathing. It was wonderful.

The doctor said to take another 1/2 tramadol in the evening if it all started up again but it didn't. So, I made it to the morning with no problems.

I am going to notify my primary and the on-call doc said he'd talk to her and I need to call my neuro yet again. It scares me that this is affecting my respiratory system so dramatically. I have had MG respiratory issues so that confused everyone and they were saying the mestinon should NOT help if it's not MG. Well, it helped a little.

I wonder about why my MG sx were exacerbated though. My voice became stronger and the hoarseness went away after the tramadol too. I have had trouble walking on and off all week and I feel stronger. Also, I stopped choking in the evening. Could this mean that the situation just put too much stress on my system?

Thanks again : )

debra