Dear Millerprof,
I am soooo sorry to hear about your daughter. It is so hard for us to go through this pain and I can't imagine what a child goes through. Poor baby. I have heard of many children getting rsd so I don't know where your dr is with his comment. I have heard via Dr. S that they think it may be genetic...something like you are born with certain cells and they may lie dormant and then the trauma occurs and boom they are in action. I would not wait two weeks longer and would get her in PT ASAP. I started with my foot too so I know what she feels. If you can get a bath towel and roll it up (like you are going to hit someone with it haha) then put the middle part under the bad foot and have her pull left and right gently with the towel just to get it de-sensitized. Let her do it. Start out for a small period of time and work higher. This is how I started out...it was agony but helped me. The faster kids get in PT and really work through it the better chance they have of geting it into remission. Once she does get it gone she will have to be very careful not to injure her body again or it will come back. My dentist's daughter had it when she was younger, got rid of it, and later injured herself and it came back. She was able to get it back in remission. My son just started dating a young lady and found out she had it when she was younger too (What are the chances he met her and she knew about rsd? Crazy?). She was able to get it into remission. Kids' bodies are still growing and they seem to have a better remission statistic than adults. Best of luck with her and I will keep her in my prayers. I feel so bad for any person (let alone a child) that gets this mess. Let us know how she is doing and please get her in a good PT program that knows how to treat rsd. I would even look into a pediatric hospital and get her into PT there. Children's Hospital of Philadelphia has a great program here in the Philadelphia, PA area. Look it up on the internet and see if it has any reports/articles on kids with rsd and take it asap to your doctor to review. I think the CHOP doctor's name is Dr. Sherry.
Best of luck,
kathy d
Quote:
Originally Posted by Millerprof
It's been quite a while since I've posted a thread here. I developed RSD in 2007 after a foot surgery. I was actually fortunate to recover from RSD after about 1 1/2 years of intensive therapies. Now my 8 year old daughter recently hurt her foot. She apparently bruised a bone (ironically the same bone that I broke, only on the opposite foot, and she also hurt her foot doing an arcade type game--like dance-dance revolution, in gym, similar to how I broke my foot on the "Jumpin' Jackpot" arcade game). Her doctor believed she would be back to running around quickly since the MRI found only a brusied bone. It's been 3 weeks now, and she's not doing well. She won't bear any weight on it, she complains of "fiery burning pain" and numbness. Her foot turns a red/mottled color like mine did when I had RSD. I took her back to the the orthopeadist on Friday and voiced my suspicions. He told me that RSD is very rare in children. But at the same time she should be getting better and she's not, and the burning pain is a nerve issue, not a bone issue. He suggested we cast it for 2 weeks in case there was a hairline fracture missed in the MRI. I didn't like that idea, as I know what casting can do to an RSD limb. But I want her to be able to walk on it, so the compromise was a Cam walker that she can take off to exercise her foot. She still won't even bear weight in that. He says if it's not better in 2 weeks that he'll do another MRI to see if there is anything they are missing; if not--it's physical therapy. I am so sad for her. I know the awful pain she's going through, and at the same time I know that she needs to move her foot as much as possible or things are just going to get worse. She won't take any meds for it--not even any ibuprophen or acethaminphen, as it makes her nauseas. I can't imagine she would be able to deal with nerve blocks or many of the other therapies I had. She's in competetive figure skating; she's obviously missing that. I just can't believe she may have RSD--as awful as I remember the pain being I really wish it were me instead of her. I have not heard of this being genetic, but I certainly have to wonder--what are the odds that we would both get this?
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