Originally Posted by bekkielynn

Hi everyone,

My name is Becky and I have a 6 month old son named Trenton (along with 2 other kids). My son was 28 week old preemie and his brain began bleeding at 3 days of age when he was only 3 pounds. He has an external ventricular drain put in when he was 3 weeks old (EVD), but that was unsuccessful. NOw he has a VP shunt and we are experiencing what may be his first malfunction. I do not know ANYONE with children with shunts. I have no support from people who know about this, nor do I know any adults with one. I basically need friends who understand what we as a family are dealing with. I am in a constant state of fear for my son, always checking his soft spot etc. Currently he has some swelling and we will be seeing the neuro. in 2 days.....which seems absolutely a horrible amount of time to wait. Thanks for your support already and for welcoming me here. I hope to meet many of you!

-BECKY LYNN