Quote:
Originally Posted by bekkielynn
Hi everyone,
My name is Becky and I have a 6 month old son named Trenton (along with 2 other kids). My son was 28 week old preemie and his brain began bleeding at 3 days of age when he was only 3 pounds. He has an external ventricular drain put in when he was 3 weeks old (EVD), but that was unsuccessful. NOw he has a VP shunt and we are experiencing what may be his first malfunction. I do not know ANYONE with children with shunts. I have no support from people who know about this, nor do I know any adults with one. I basically need friends who understand what we as a family are dealing with. I am in a constant state of fear for my son, always checking his soft spot etc. Currently he has some swelling and we will be seeing the neuro. in 2 days.....which seems absolutely a horrible amount of time to wait. Thanks for your support already and for welcoming me here. I hope to meet many of you!
-BECKY LYNN
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Hi Becky,
My daughter is turning a year this week and is actually going in for a vp shunt on her birthday. My daughter was two months premature and developed hydrocephalus after birth. I was hoping to learn more about your experience with your daughter. **
Thanks, Amanda