View Single Post
Old 02-16-2011, 01:52 PM
neutro's Avatar
neutro neutro is offline
Member
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
neutro neutro is offline
Member
neutro's Avatar
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
Default

Hi Elly,
I'm almost 72 and have MG since I was 68. Started also as ocular and went to generalized after I was given Ceris...
I have been taking Cellcept from the beginning (1.5 g/d now) and Pred (15 mg/d now but 18 months ago I was down to 5 mg/d and the maximum 3 years ago was 75 mg). Mestinon varied from 180 mg/d (3 x 60) to 540 mg (6 x 60 + 1 Timespan). My neuro leaves me free to manage it to some extent, but she knows me and I learned to listen to my body to adjust my dosage.
I also have plasma exchange once a month, this was very effective initially but now, their effectiveness seems to wear out.
My main trouble is leg weakness which prevents me from walking more than 45 minutes without resting for at least one hour.
I do not have severe sleep problems but when needed, I rely on homeopathy and herbs.
Maurice.
neutro is offline   Reply With QuoteReply With Quote