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Old 02-17-2011, 01:33 PM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
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Well...every relationship is different. It's great that he has stuck with you through the whole RSD thing. But I'll share my experience with you and how I think it's different from what you are getting because I honestly don't think you're wrong to feel a little paranoid.

See...Jeff (my bf) and I have been going out almost 8 years now. We used to do a lot things together like travel, go hiking, fishing, etc. In July 2009 I hurt myself at work and was diagnosed with CRPS. It took a few months to find the right doc and get the diagnosis...but while I was happy to finally know what was wrongl...I was devastated at the diagnosis and the fact that there is no cure. At the time I got hurt I was 25. Now I'm 27 and we're still together...but we don't do most of the things we used to. But he still treats me exactly the same as before. We never talk about my RSD, He know I have it and he can tell when I'm having a rough time and then he'll being my plate of dinner out to me instead of me going to the kitchen or he'll grab an extra can of pop for me so I don't have to get up later. But it's mever like he coddles me. He makes me feel normal and that is really what I need.

Right now I am going through a really rough time and come serious complications where I can't even walk or drive because soemthing went wrong with the LSB that my pain doc did and now I an suffering from uncoordination, no control over my feet, extreme pain in my neck and spine including tenderness that is now spreading everywhere. I don't know what wrong and am scared that it's a spread of the RSD more than anything else. So he helps me walk to the bathroom and drives me around (cause I can't right now)...but when we're sitting on the couch he still makes me laugh, reads me the newspaper (which I have always found humorous because I won't read the paper or watch the news). He still teases me for getting crumbs all ober my shirt or fighting with my little dog.

It's great to have someone who is there for you when you need it, and who does things to help you without it all being about being your caretaker. If it were me...I'd try to explain to him that you don't want to be the girl with RSD...you want to be his normal girlfriend. And yes, you'll still need help with things but your relationship can't be about him taking care of you all the time. Does that make sense?

I feel really lucky and blessed to have Jeff...but I also feel guilty because I feel like he has given up so much being eith me, But I WILL get better. I WILL. That's what we focus on and we make our plans for the future like I will be better. And it's that normalcy that keeps me sane.
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