Hi Pip

Im glad to got to speak with somone in relation to your LED lights and that you now know what is actually going on.

Its great to read that you have had 6/7 years life in your battery thats good to read. Im sorry though that you are experiencing such pain from the pulsing. I can understand why you would want to turn it off. Ive only mine implanted since Aug 2010 (Im in Ireland BTW so relatively new here for us)and occasionally I have turned mine off if I feel it a bit overwhelming.

But I suppose at this stage of your implant you should probably now try to find out what is actually going on with your neck and shoulder. Is it related to your SCS? is it another problem to cope with ? all these I suppose will need to be addressed. Its a big decision deciding whether to replace the battery and continue with the SCS and I hope that you get some answers very soon.

Take care

Jackie