Hi Garritty,

The biggest challenge is there aren't very many of us out there and those that are don't visit these forums very much. I'm just guessing here though.

I'm with you and only my primary care physician deals with all of my treatment and meds. I like that because there is no chance for confusion having several people involved all with different opinions of how they think I should be treated.

The last two specialists were very up front and told me there was nothing they could do short of "trying" stronger narcotic meds or even electro brain implants. No thank you on all counts. My PCP said he believes the time is well passed for any more specialists and to just make the best of each day. He likes to tell me, "Doctors prescribe and God decides." So true.

I don't know what you've tried to find on the internet but my experience is there isn't a whole lot out there. What I do find is primarily from overseas. In answering you quest to keep up with current treatments and advances, I've found none.

I agree with you 100% as I too avoid any possibility of having to be admitted to a hospital regardless the reason. Last Thanksgiving my doctor wanted to admit me for severe bronchitis possible pneumonia and I made it very clear I would not be admitted. Against his better judgment he prescribed mega antibiotics and let me stay home. The only thing I fear about going into the hospital is everyone wants to get in on the "what's really wrong with him" mentality. After 10 years of that crap, no longer!

I will never again waste my time and energy trying to "convince" a specialist of my condition. Why? It is not going to change anything for my benefit and only feed on their curiosity desire to find the holy grail solutions. Both of which I have NO interest.

Glad you came back. **

Talk to you soon.